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  1. ronking #

    I’ve experienced at times a patient who needed full time care living alone who appeared to remain stronger and independent a longer period of time because of the need for self care. The necessity to remain responsible may encourage greater strength and focus for with more satisfaction and self direction. It’s also good to know that inpatient care may be available if a patient declines to the point that even a caregiver would be unable to care well for patient. At that time assistance should be available to consider alternatives.

    February 7, 2013
    • I agree. Independence is a very big part of a patient’s life and it should be considered when a decision is made about their well being. Thank you for sharing your thoughts!

      February 7, 2013
  2. I tried to get information from two hospices last summer, just to be prepared for the future. Both seemed to be saying that a patient must have full time care at home or else be in a nursing home. The ALF where my dad stays doesn’t permit hospice there. They don’t want the responsibility unless the family hires 24 hour nurses to be present. Thus my conclusion was in my area, dad would have to go into a nursing home if he needed hospice. I still want to avoid the nursing homes but the local hospices that I talked to only had inpatient care for respite or the last 2 weeks of life. Dad is fine so far, but in his mid-90’s with Alzheimer’s and some chronic conditions. He was in a nursing home for several weeks and it set him back a lot socially. He just stayed in bed most of the time. I really want to avoid a nursing home in the future, but I don’t know if that will be possible.

    February 7, 2013
    • In my practice I have come across a few ALF that will allow hospice in their facility without you having to hire a 24/7 caregiver. If you haven’t already, you may want to look a little outside of your area for one of those. If your father’s Alzheimer’s disease is so advanced that he would not be able to call 911 should he need to, then he should have a caregiver 24/7. But if he is cognitively aware and could make that call, then I don’t see why a hospice would decline services. Good luck with your father.

      February 7, 2013
      • Thanks. This is an important issue to consider ahead of time.

        February 7, 2013
  3. My Dad was a hospice pt in 2006-2007, and he lived alone except at the very end, when we moved in during the last 2 weeks of his life. He benefited so much from hospice care, he was able to remain independent with his caregivers providing support. Fortunately, his caregivers all lived within 5-10 minutes of his home, so we had the blessing of sharing his end of life care,

    February 7, 2013
    • It must feel good knowing that you gave your dad the independence that he wanted and needed. On the other hand at one point you must have worried about his ability to do things on his own at times. Thanks so much for sharing.

      February 7, 2013

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